For years, Anne Johnson struggled with infertility, experiencing the heartbreak of six pregnancies that ultimately ended before she could hold a child in her arms.
It wasn’t until later that she discovered her fertility was hindered by uterine fibroids, a condition she had been unaware of for most of her life.
“Eventually, I had to let go of hope. Living without hope can be incredibly disheartening,” she reflected on her journey.
Anne Johnson endured the effects of uterine fibroids for decades. (ABC News: John Dobson)
“I only wished for one child, and I didn’t think that was too much to ask.”
“Doctors often told me it was just something women had to deal with, a normal part of life,” she shared. “But despite the years, my condition never improved.”
Uterine fibroids are non-cancerous tumors that develop within or around the muscular layer of the uterus, varying in size from a small pea to over 20 centimeters in diameter.
Understanding Uterine Fibroids
The exact causes of uterine fibroids remain unclear. While some women experience no symptoms, others endure severe pelvic pain and heavy menstrual bleeding.
In Ms. Johnson’s case, these fibroids brought long-lasting challenges to her fertility.
Anne Johnson advocates for better understanding and support for women facing uterine fibroids. (ABC News: John Dobson)
“The entire experience felt like an emotional roller coaster, and it severely affected my well-being. The lack of answers added to my frustration,” Ms. Johnson expressed.
“It feels like there’s been no advancement from my attempts to conceive in my 30s to now in my 60s.”
“Women experiencing this cycle of pain need help and answers,” she added.
At the age of 51, Ms. Johnson underwent a hysterectomy due to persistent pain from fibroids, only to later discover she also had endometriosis.
Anne Johnson utilizes painting as a form of therapy. (ABC News: John Dobson)
Using art as a therapeutic outlet, she continues to address the emotional pain connected to her experiences.
The Prevalence of Uterine Fibroids
Though uterine fibroids are commonly acknowledged, the true number of affected women is still uncertain.
Prioritizing Women’s Health in National Budget
According to Perth-based gynecologist and fertility expert Tamara Hunter, nearly one in three women may be affected by fibroids, highlighting the pressing need for further research in this area.
“For too long, women have been told to simply cope with conditions such as endometriosis and fibroids without adequate support,” Dr. Hunter asserted. “It’s crucial to investigate why these conditions arise.”
Currently, there is no established method to prevent the formation of fibroids.
PMDD: A Challenge for Many Women
Without a clear understanding of the underlying causes, early diagnosis and prevention remain difficult.
Uterine fibroids can influence fertility in several ways, creating an environment detrimental to embryo health due to inflammation or obstructing successful implantation in the uterine lining.
“Even though they are benign, many believe that if fibroids are asymptomatic, there’s no reason for concern,” Dr. Hunter explained.
Dr. Tamara Hunter indicates that as many as one in three women may experience uterine fibroids. (ABC News: Ruby Littler)
“The reality is that fibroids grow over time, primarily driven by hormonal influences.”
“They may expand slowly, eventually reaching a size that starts to generate symptoms,” Dr. Hunter noted.
For women like Anne Johnson who experience severe symptoms, the standard procedure often involves surgical removal of the fibroids.
Empowering Women to Speak Out
Bethany Lord, CEO of women’s health service LUMA, encourages women to speak up about their struggles.
“It’s crucial to find ways to prevent these conditions before they start affecting women’s lives,” Ms. Lord emphasized.
Bethany Lord advocates for women to raise awareness about their health challenges. (ABC News: Ruby Littler)
Ms. Lord envisions increased collaboration among policymakers, healthcare providers, and researchers to promote awareness about women’s health issues.
“If you suspect something is off, don’t hesitate to seek help and get the support you need,” she urged.
Towards a Healthier Future
Enhancing the diagnosis and treatment of reproductive health challenges, such as uterine fibroids, is a key focus of Western Australia’s women’s health policies.
A representative from the Department of Health reaffirmed this commitment, stating that this policy aims to ensure equitable access to health services that enhance the safety and well-being of women and girls across WA.